Longitudinal Studies of the Variable Phenotypic Presentations of Rapid-Onset Dystonia-Parkinsonism, Alternating Hemiplegia of Childhood and other ATP1A3-related disorders.
You are invited to be in a research study. If you are a parent or guardian reading this brochure for your child, "you" refers to "your child" for the remainder of this document. Research studies are designed to gain scientific knowledge that may help other people in the future. You have been asked to participate because you may have symptoms of Rapid-onset Dystonia-Parkinsonism (RDP), Alternating Hemiplegia of Childhood (AHC), Atypical Parkinsonism, Dystonia or other ATP1A3-related movement disorders. Please take your time to make your decision, and contact us if you have any question about the study. You may also discuss the studly with your family and friends.
Allison Brashear, MD, MBA
Vice President for Health Sciences and Dean,
Jacobs School of Medicine and Biomedical Sciences
University at Buffalo
Buffalo, NY
